Tuesday, 21 June 2011

From Ear Infection to Ankylosis - Part Two

Last week saw us finally get the news that we have been waiting for since April.  We received the date from the hospital for Son No 1 surgery.  To be fair we were given a date in June for the operation but it clashed with our holiday so had to postpone it!  So the NHS weren’t really dragging their feet on this one.  The reason for the delay in getting a date was because they have to get 4 specialists in a room together at the same time, according to one of the surgeon’s “it’s like herding cats”.  Since I have never done this nor have any intention in doing this I will take his word for it.
The good news that came out of the consultation that we had back in April is that it is not as bad as they first thought.  They are now calling it “Pseudo Ankylosis” as the jaw joint is not totally fused so they think they will just be able to go and reshape the jaw joint to allow the jaw open to its full potential.  This of course sounds great to us but to Son No 1 who desperately tries to show me every day that he can open his mouth wider (which he can’t) it’s not. 
The general consensus within the medical team is that it is still the result of the horrific ear infection that he had when he was 19 months old.  If you are wondering how wide he can open his mouth, well they measured it at 5mm which in imperial terms is 0.1968 inches, so in my terms that’s fuck all.
So roll on the 12th July when fingers crossed they will still have a bed for him and the specialists can work their magic and reshape my wee boys jaw. 
Will keep you posted…

7 comments:

Emma said...

So glad it's not as bad as they first thought! Hope he's not too worried bless him, it will be over and done with before he knows it...Emma :)

Stigmum said...

Awww, little man. Definitely keep us posted and come the 12th July, I'll do my stiggy thing and ask the universe to look after him. Do this every day with my son. Yours is very brave and so are you because it must all be quite tough emotionally. Take care you hear! xxx

Frankie P said...

Emma, yeah brillant news that the op isn't going to be that bad.. He gets upset when i talk to him about it, bless him... Trying to bribe him with a new ds game, don't think its working thou... xx

Stigmum.. thanks so much for your comment, please ask away for us.. anything to make it easier for him and me.. xx

Mari's World said...

Hello!!! Finlly I'm catching up, it's taking forever. YOu broke my heart on telling how he tries to prove he can open his mouth more. Bless him.
You are in my thoughts and I pray this is all over and done with soon
x

Frankie P said...

Mari, Thanks for your lovely comment. We are quite positive that it will all go well and that soon he will be able to suck a lollipop properly... xx

Sarah said...

That's awesome news about the severity being less. It will all be over with in a few weeks - I bet you'll be pleased once recovery is over too poor little soldier. Xx

Frankie P said...

Hey Sarah, yeah it's brillant news but still a full on op. Poor wee man dosen't know what is going to hit him x